Allen J, Holman CD, Meslin EM, et al. Privacy protectionism and health information: is there any redress for harms to health? Journal of Law and Medicine 2013;21(2):473-485
Health information collected by governments can be a valuable resource for researchers seeking to improve diagnostics, treatments and public health outcomes. This article examines the legal, ethical and structural context in which data custodians make decisions about the release of data for research. It considers the impact of those decisions on individuals. While there is strong protection against risks to privacy and multiple avenues of redress, there is no redress where harms result from a failure to release data for research.
http://www.ncbi.nlm.nih.gov/pubmed/24597394
Health information collected by governments can be a valuable resource for researchers seeking to improve diagnostics, treatments and public health outcomes. This article examines the legal, ethical and structural context in which data custodians make decisions about the release of data for research. It considers the impact of those decisions on individuals. While there is strong protection against risks to privacy and multiple avenues of redress, there is no redress where harms result from a failure to release data for research.
http://www.ncbi.nlm.nih.gov/pubmed/24597394
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